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Heart Failure

VADs

MD

Fontan
Other

Muscular Dystrophy

1. Dystrophinopathies (Duchenne, Becker, & Carriers)

CHARTER/KDDs

Download

DMD Project Charter

DATA ENTRY LINKS

Muscular Dystrophy Project (Baseline data collection)
    1. REDCap link for enrollment of patients for baseline data collection
    2. Select the “ACTION MD” project after logging in

INTERVENTIONS/TOOLS

Muscular Dystrophy - An Introduction to Heart Failure
Download

MD – An Introduction to Heart Failure

Common Medicines for Muscular Dystrophy
Download

MD Common Medicines

Muscular Dystrophy Progression Tracker
Download

MD Progression Tracker

© 2023 Advanced Cardiac Therapies Improving Outcomes Network
© 2023 Advanced Cardiac Therapies Improving Outcomes Network