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Heart Failure

VADs

MD

Fontan
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Muscular Dystrophy

1. Dystrophinopathies (Duchenne, Becker, & Carriers)

PROJECT SUMMARY / CHARTER / KDDs

MD Project Summary
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Muscular Dystrophy Registry Project Summary

Dystrophinopathy Project Charter
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Muscular Dystrophy Project Charter

DATA ENTRY LINKS

Muscular Dystrophy Project (Baseline data collection)
    1. REDCap link for enrollment of patients for baseline data collection
    2. Select the “ACTION MD” project after logging in

INTERVENTIONS/TOOLS

Muscular Dystrophy - An Introduction to Heart Failure
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MD – An Introduction to Heart Failure

Common Medicines for Muscular Dystrophy
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MD Common Medicines

Muscular Dystrophy Progression Tracker
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MD Progression Tracker

VIDEOS

Understanding Heart Failure in Muscular Dystrophy

Examining Heart Function in Muscular Dystrophy
© 2024 Advanced Cardiac Therapies Improving Outcomes Network
© 2024 Advanced Cardiac Therapies
Improving Outcomes Network